Qualified Access Data

is shared in compliance with how participants and the submitting institutional review board (IRB) have agreed the data may be shared and used for research purposes

Data Availability Summary

128

Datasets

23

Data Types

103,721

Subjects

448,147

Files

1.38 PB

Total size

Data Discovery

Datasets can be examined in three places to determine if researchers would like to apply for access to them.

Search for a dataset by key terms or use integrated filters to narrow down datasets. Then check out the dataset page to see a description of the dataset and a summary of the samples and files available.

DSS Database

All newly deposited data is available through the NIAGADS DSS. Legacy datasets are in the process of being transitioned to the DSS.
Browse Datasets

NIAGADS Data Archive

Can't find the dataset you are looking for in the DSS? Check out the legacy datasets in the NIAGADS Data Archive.
Browse Datasets

Gen3 Data Discovery Portal (beta)

Researchers can view summary information about cohorts, phenotypes, and available genetic data for the ADSP Umbrella Dataset (NG00067). Investigators with approved DARs can explore the dataset and filter down to export relevant S3 file paths for download.
Browse Discovery Portal

Apply for Data

Ready to begin the Data Access Request (DAR) process? Check out the application documentation on our support portal.

Still have questions, please reach out to niagads@pennmedicine.upenn.edu

DSS Database NIAGADS Data Archive

Submit Data

Have a new or derived dataset to submit? Review the data submission instructions on our support portal.

Once you're ready, email help@niagads.org to begin the submission process.

Submission Instructions